Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

Evaluer si l’utilisation de la cryothérapie percutanée permet, chez des patients atteints de NF1 et sur des neurofibrome ou neurofibrome plexiformes :

- Objectif Principal : diminuer l’EVA

- Objectif Secondaire : diminuer la taille de la tumeur, évaluée par une IRM avant et après le geste

Data controller

Directeur Général

Categories of data used
Données de santé
Origine de données utilisées
Soins
Centre Léon Bérard (Lyon)
2020
2021
Population subject to research or data processing

Tous les patients majeurs, atteints de NF1, avec un neurofibrome ou neurofibrome plexiforme non résécable ou résécable avec une rançon cicatricielle majeure.

Legal basis

Recherche scientifique menée dans l’intérêt public dans le domaine de la santé publique (articles 6.1.e et 9.2.i du Règlement (UE) n° 2016/679)

Internal and external data recipients

AMINI ADLE Mona, Praticienne spécialisée des CLCC, Centre Léon Berard, Onco-dermatologie

  • Radiologie Centre Léon Berard
Research start date
26/12/2023
Data retention period

2 ans

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Download the information note
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If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.