Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

L'étude vise à comparer les caractéristiques morphologique, transcriptomique et épigénétique (par profilage du méthylome) d’une cohorte collaborative

Data controller

Institut Bergonié (Bordeaux)

Categories of data used
Données d’identification (sans donnée nominative) / Données de santé / Données génétiques
Origine de données utilisées
Soins
Others (excluding cancer centers)
2021
Other
base de données du Réseau de Référence en Pathologie des Sarcomes de Tissus Mous et des Viscères (RRePS)
Population subject to research or data processing

Patient porteur d’une lésion avec fusion NTRK

Legal basis

Exécution d'une mission d'intérêt publique

Internal and external data recipients

Equipe projet Institut Bergonié (Coordonnateurs, Médecins)

Research start date
01/09/2021
Data retention period

15 ans

To protect your health data, it is recommended not to disclose personal health information about you or a family member in this form.
We invite you to indicate the facility where you are receiving care and we will ensure that the appropriate connection is established to guarantee the exercise of your request.
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The information collected in the questionnaire is not stored on this site but is sent to the data controller mentioned in the research form. This data is collected in order to process your request to exercise your rights.

Data marked with an asterisk in the questionnaire must be provided for the form to be submitted and your request to be processed.

The collected data will be communicated to your data controller and their DPO for processing these requests.

They are kept for the time of analysis and response to the same.You have the right to access, rectify and delete your personal data. You can also object to the processing of your data.

To exercise these rights or for any questions about the processing of your data, you must complete this form.

If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.