Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

Décrire les caractéristiques clinico-biologiques, tumorales et évolutives des patients (tout âge confondu) atteints de Syndrome de Lynch ou d’une forme associée ayant développé un sarcome.

Data controller

Directeur Général

Categories of data used
Données d’identification (sans donnée nominative) / Données de santé / Données génétiques / Antécédents familiaux
Origine de données utilisées
Soins
Centre Léon Bérard (Lyon)
2014
2015
2016
2017
2018
2019
2020
2021
2022
2023
Population subject to research or data processing

Patients présentant un syndrome de Lynch (mutation constitutionnelle d’un gène MMR) ayant présenté un sarcome

Legal basis

Recherche scientifique menée dans l’intérêt légitime de lutte contre le cancer (articles 6.1.f et 9.2.j du Règlement (UE) n° 2016/679)

Internal and external data recipients

Dr THIBAUT Valentin Toulouse – IUCT Oncopole

Dr ROCHEFORT Pauline, médecin oncologue et oncogénéticienne Centre Léon Bérard

Research start date
19/04/2024
Data retention period

2 ans après la publication scientifique puis archivage sur un support distinct

Download the information notice
Download the information note
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The information collected in the questionnaire is not stored on this site but is sent to the data controller mentioned in the research form. This data is collected in order to process your request to exercise your rights.

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The collected data will be communicated to your data controller and their DPO for processing these requests.

They are kept for the time of analysis and response to the same.You have the right to access, rectify and delete your personal data. You can also object to the processing of your data.

To exercise these rights or for any questions about the processing of your data, you must complete this form.

If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.