Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

Analyser les données des patients ayant reçu une combinaison de vénetoclax-obinutuzumab (VenO) afin d’en décrire le profil de tolérance et d'en étudier l'efficacité en vie réelle.

Data controller

Association French Innovative Leukemia Organization (F.I.L.O.), 

Categories of data used
Données d’identification (sans donnée nominative) / Données de santé / Données génétiques / Antécédents familiaux
Origine de données utilisées
Soins
Centre Léon Bérard (Lyon)
Population subject to research or data processing

Patients 

  • ayant bénéficié de l'accès précoce au programme VenO mené dans les centres hospitaliers français
  • non traités antérieurement et non éligibles aux iBTK ou à la fludarabine
  • et porteurs d'une mutation TP53/délétion del17p
Legal basis

Intérêt légitime de l'association, au regard de ses missions.

Internal and external data recipients

Equipe de recherche du Centre Léon Bérard et de l'association FILO

Sous-traitants de l'association FILO :

  • Développeur de la base de données Webtrial : Quanticsoft
  • Hébergeur de données (hébergeur de données de santé agréé) : Etix Everywhere
Research start date
29/12/2025
Data retention period

2 ans après publication.

Download the information notice
Download the information note
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The information collected in the questionnaire is not stored on this site but is sent to the data controller mentioned in the research form. This data is collected in order to process your request to exercise your rights.

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The collected data will be communicated to your data controller and their DPO for processing these requests.

They are kept for the time of analysis and response to the same.You have the right to access, rectify and delete your personal data. You can also object to the processing of your data.

To exercise these rights or for any questions about the processing of your data, you must complete this form.

If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.