Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

L’objectif de ce projet est de centraliser les informations relatives aux histotypes rencontrés afin de mettre à disposition un atlas immunitaire et moléculaire de ces tumeurs en décrivant de la façon la plus détaillée possible le microenvironnement tumoral.

La création d’un atlas des sarcomes permettrait une prise en charge homogène et optimale de la pathologie, au niveau national et international.

Data controller

INSTITUT BERGONIE

Categories of data used
Données d’identification (sans donnée nominative) / Données de santé / Données génétiques
Origine de données utilisées
Soins
Institut Bergonié (Bordeaux)
2012
2013
2014
2015
2016
2017
2018
2019
2020
2021
2022
Gustave Roussy (Villejuif)
2012
2013
2014
2015
2016
2017
2018
2019
2020
2021
2022
Centre Léon Bérard (Lyon)
2012
2013
2014
2015
2016
2017
2018
2019
2020
2021
2022
Other
CONTICABASE
Population subject to research or data processing

1500 patients adultes atteints de différents sarcomes avec 10 types tumoraux différents (sarcomes, tumeur desmoïde ou GIST (Tumeurs stromales gastro-intestinales).

Legal basis

Exécution d’une mission d’intérêt public

Internal and external data recipients

INSERM- Centre de Recherche des Cordeliers - Paris 6ème

Explicyte 

Equipe projet Institut Bergonié (coordonnateur, médecins)

Research start date
15/01/2022
Data retention period

20 ans maximum

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Download the information note
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If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.