Mes données de santé
The information site for patients treated within the Unicancer network or included in Unicancer network clinical trials. 

About us

Objectives

Apporter une meilleure connaissance des modalités de prise en charge et des facteurs pronostiques associés pour les patients atteints de sarcome primitif osseux métastatique en France.

Obtenir une référence de prise en charge en vie réelle pouvant servir dans les futurs essais cliniques menés dans cette population de patients.

Data controller

INSTITUT BERGONIE

Categories of data used
Données d’identification (sans donnée nominative) / Données de santé / Données médico-administratives
Origine de données utilisées
Soins
Institut Bergonié (Bordeaux)
2008
2009
2010
2011
2012
2013
2014
2015
2016
2017
2018
Gustave Roussy (Villejuif)
2008
2009
2010
2011
2012
2013
2014
2015
2016
2017
2018
Institut Claudius Regaud (Toulouse)
2008
2009
2010
2011
2012
2013
2014
2015
2016
2017
2018
Institut Curie (Paris et Saint-Cloud)
2008
2009
2010
2011
2012
2013
2014
2015
2016
2017
2018
Others (excluding cancer centers)
2008
2009
2010
2011
2012
2013
2014
2015
2016
2017
2018
Population subject to research or data processing

Patients de plus de 12 ans ayant un diagnostic de sarcome d’EWING, d’ostéosarcome ou de chondrosarcome fait dans un des centres experts de relecture RESOS anapath et pris en charge dans un des centres experts du GSF-GETO.

Legal basis

Exécution d'une mission d'intérêt public

Internal and external data recipients

Equipe projet Institut Bergonié (coordonnateur, médecins)

Research start date
01/01/2022
Data retention period

20 ans

Download the information notice
Download the information note
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The information collected in the questionnaire is not stored on this site but is sent to the data controller mentioned in the research form. This data is collected in order to process your request to exercise your rights.

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The collected data will be communicated to your data controller and their DPO for processing these requests.

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To exercise these rights or for any questions about the processing of your data, you must complete this form.

If you believe, after contacting us, that your "Data Protection" rights are not being respected, you can file a complaint with the relevant data protection authority.